General information

When you are diagnosed with cancer in the UK, some information about you, your diagnosis and treatment is collected in a cancer registry.

This information is used to plan and improve health and care services. Your hospital will usually give this information to the registry automatically.

There are strict rules to make sure that this information is kept safe and secure. For more information, visit Your data and the cancer registry | Macmillan Cancer Support

We take part in research and clinical trials for patients with cancer.

Our oncology and haematology teams are passionate about providing excellent, evidence-based care to our patients. Research through clinical trials allows us to understand health and disease better.  We have a number of clinical trials open at Northumbria. We will let you know if you are eligible to take part. Involvement in clinical trials is your choice. You must consent to take part.

We have trials open for breast, bowel and haematology cancers, as well as for other haematology conditions. 

To find out more, please email researchanddevelopment@northumbria-healthcare.nhs.ukor call 0191 293 4087.  You can also speak to a member of your medical or nursing team.

Open trials

Breast 

Macmillan Cancer Support provides virtual emotional and practical support to Deaf people living with cancer across the UK.

This includes support for Deaf people who are supporting a hearing person living with cancer - Macmillan Deaf Cancer Support Project | Macmillan Cancer Support

The cancer quality of life survey is a national survey run in partnership with NHS England. The survey is for people with cancer. It will be sent to you 18 months after diagnosis.

The survey’s aim is to find out how quality of life may have changed for people with cancer. Your answers will be compared with information about your diagnosis and treatment.

This will help the NHS see where care is working well or not so well, and if any new services are needed. This will help the NHS to improve how it supports people to live as long as possible.

Reasonable adjustments are a legal requirement. They are part of the Equality Act, 2010. We have to make reasonable adjustments to let people access our services. 

This will include:

• People with physical, sensory and learning disabilities
• People with a long-term condition such as dementia
• People with cancer

The NHS must make it easy for these people to use health services. Examples of reasonable adjustments include:

• Making sure that there is wheelchair access
• Providing letters / information in different formats, such as:
  • Easy read
  • Larger fonts
  • On coloured paper
• Longer appointments to make sure you understand everything
• Making sure you have a family member or carer with you, if needed

The North East & Cumbria Learning Disability Network is working on reasonable adjustments in our region. Find out more here.

Reasonable adjustments in the workplace

Reasonable adjustments in the workplace for people with cancer | Macmillan Cancer Support

Social prescribing is an approach that connects people to activities, groups and services in their community. The aim is to meet practical, social and emotional needs that affect health and wellbeing.

Social prescribing link workers work in GP practices. They can help people by focusing on ‘what matters to me’. They can help people take control of their lives. Social prescribing is an all-age, whole population approach, that works well for people who:

• Have more than one health condition
• Need support with low-level mental health issues
• Are lonely and feel isolated
• Have complex social needs which affect their wellbeing

To speak to a social prescriber, ask your GP to put you in touch.